Nursing Care for Outpatients with Multiple Sclerosis: Complex Approach and Medical-Social Aspects //// Сестрински грижи при пациенти с множествена склероза - комплексен подход и медико­ социални аспекти

Staneva, Violeta (2017) Nursing Care for Outpatients with Multiple Sclerosis: Complex Approach and Medical-Social Aspects //// Сестрински грижи при пациенти с множествена склероза - комплексен подход и медико­ социални аспекти. Doctoral thesis, Medical University of Varna.

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Official URL: http://eprints.mu-varna.bg/322/

Abstract

[EN] The purpose of this thesis is to investigate the medical and social aspects of nursing in outpatient care for MS patients and to develop an algorithm for complex nursing activities and a model for a training centre for nurses involved with these patients. The following tasks have been formulated: to investigate the medical and social needs of patients with newly diagnosed MS and of those on disease-modifying treatment; to investigate the views of patients' relatives about the need and benefits of specialized nursing care; to investigate the assessment of general practitioners, neurologists and healthcare specialists regarding the provided complex care; to study the quality of life self-assessment in MS patients with the MSQL-54 questionnaire; to investigate the opinion of MS patients who have undergone individual self-injection training. The study explored the opinion of 296 responders divided into 4 groups. The following methods have been applied: sociological, including documentary; medicostatistical inquiries, SWOT analysis; own experience. Contributions: The medical and social needs of MS patients of timely and complete information on the choice of medication, training and monitoring the condition during the course of the disease were established; New information has been obtained through the MSQOL-54 questionnaire; The role of the nurse in the overall process of planning long-term care in relation to the course of the disease - training, monitoring and evaluation of the outcomes of care - was established; The need for measures to overcome the barriers of inequality between MS patients with complex quality health care has been demonstrated. An algorithm for complex nursing activities aimed at MS patients with outpatient care has been developed, which improves the monitoring, treatment and social adaptation of patients with MS by unifying and regulating certain activities. A Model of a Training Centre for Specialized Training for Healthcare Professionals has been proposed that provides highly specialized nursing services for MS patients and sustainable product development through ongoing nursing training. Participation in a team of authors to compile a patient's diary to track regular injections of Interferon Beta and to develop a step-by-step guide to the new Interferon Beta system. ///////// ///////// [BG] Дисертационният труд е насочен към проучване на медико-социалните аспекти на сестринските грижи в извънболничната помощ при пациенти с диагноза множествена склероза като чрез получената информация да бъде разработен Алгоритъм за комплексни сестрински дейности и Модел за обучителен център на медицински сестри, обслужващи тези пациенти. Сред задачите на разработката са проучване на медико-социалните потребности на пациенти с новодиагностицирана МС, такива, провеждащи лечение, мнението на близките, оценка на общопрактикуващи лекари, невролози и специалисти по здравни грижи, самооценка за качеството на живот чрез въпросник MSQOL-54 и пациенти, преминали индивидуален курс на обучение за самоинжектиране с интерферон. Изследвано е мнението на 296 респонденти, разпределени в 4 групи. Използваните методи се обобщават като социологически, медико-статистически, SWОТ­ анализ и собствен опит. На база на проведените проучвания са получени следните приноси: установени медико-социални потребности на пациенти с МС, получена нова информация чрез въпросника MSQOL-54, установена роля на медицинската сестра, доказана е необходимостта от мерки за преодоляване на бариерите на неравнопоставеност на пациентите с МС, разработен е Алгоритъм, предложен е Модел за обучителен център и е взето участие в авторски колектив за съставяне на дневник на пациента за проследяване на редовното инжектиране с Интерферон Бета и разработване на упътване стъпка по стъпка към системата за прилагане на Интерферон Бета.

Item Type: Thesis (Doctoral)
Additional Information: Assist. prof. Violeta Staneva, MD, PhD at the Department of Nursing Care, Faculty of Public Health, Medical University of Varna
Uncontrolled Keywords: Multiple Sclerosis, nursing care, newly diagnosed MS, MSQOL-54 questionnaire, patients’ step-by-step guide
Subjects: R Medicine > RA Public aspects of medicine
Divisions: Faculty of Medicine, Health and Life Sciences > School of Medicine
Depositing User: Dr. Violeta Staneva
Date Deposited: 24 Aug 2017 13:56
Last Modified: 11 Sep 2017 07:47
URI: http://eprints.mu-varna.bg/id/eprint/322

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